Article written by Dr R Srivastava in The Guardian (Australia). Great article.
What is the cost of a patient’s last wishes?
Most of us try our best to help complete the last wishes of our patients. Some near impossible, some just plain crazy and most possible with lots of help.
I will highlight some stories that I have collected over the years for patients. Will write about them over the next few days.
Text taken from The New England Journal of Medicine: http://www.nejm.org/doi/full/10.1056/NEJMp1716548?query=featured_hematology-oncology
Text taken from The New England Journal of Medicine: http://www.nejm.org/doi/full/10.1056/NEJMc1716701?query=featured_home
Paul Maggiore, M.B., B.S.
Kevin Chung, M.B., B.S.
Sir Charles Gairdner Hospital, Nedlands, WA, Australia
The text is from the ABC website – http://www.abc.net.au/news/health/2018-02-15/dr-bawa-garba-who-is-to-blame-when-a-medical-tragedy-occurs/9417166
Mistakes made: But who’s to blame?
Could it happen here?
A needless death
Text is from the ABC Australia website (health section): http://www.abc.net.au/news/2018-03-04/cervical-cancer-may-be-eliminated-in-australia-40-years-experts/9507050
Cervical cancer could be effectively eliminated in Australia within the next four decades, medical experts say, after new data revealed infection rates had plummeted to just 1 per cent in young women.
Amazing article by Dr Tom John from Melbourne. I agree with him.
Ars looks at this long drawn issue. At least the gummy bears are safe!!
Medicine at its best – do the best thing for the patient, in the best way possible, in the best time possible, with the best options available.
The article from Ars Technica goes through the gist of the conspiracy of the sugar industry paying researchers to downplay the impact of sugar and heart/coronary disease. This was decades prior to anyone knowing about the connection.
The actual article from JAMA:
Great article from the ABC regarding male nurses. They work hard, struggle for their patients, are dedicated… yet are discriminated against.
Calvary has started work on the largest private hospital in South Australia. The hospital should be ready in the next few years. Massive investment. Good job.
Good article in the ABC by Ranjana and Ginger about people living with cancer. We do tend to label people with cancer as heroes or as people who “deserve it”.
A cancer diagnosis is sad. Full stop.
BBC article about organ donors and cancer patients. I have had several people with cancer who have pledged to donate their corneas after death. In a way they keep seeing through someone else’s eyes.
Are you an Organ Donor? Worth thinking about.
Register to become an Organ Donor in Australia. Each country would have their own donor registry.
A mum has been hit with a $1000 car parking fine at a hospital in Perth. She brought her son (who has a congenital heart condition) to the hospital Emergency Dept and left after 2 hours. Then got a fine of a $1000.
Who decides on these rates and fines? Just amazing!
This article in The Guardian by Dr Ranjana Srivastava is very confrontational. It delves into the possible disconnect that we as health professionals have from our patients, their families and friends.
Life is important. Dying is a part of life. Both should be taken care of.
Powerful, perspective-shifting Ted Talks on what it means to live courageously. What an amazing perspective!!
An insight into people picking up the pieces of their lives and not just moving on…. just racing on.
Good collection of talks from the Ted playlist. Talks from researchers who’ve dedicated their lives and careers to understanding cancer and someday ending it.
The New York Times has put together a very comprehensive article discussing immunotherapy for people with cancer. Great read.
I have used these class of medication extensively and am very impressed with the results. The problem is finding the group of patients who would respond well. The quest continues.
A good overview of the history in treatment, punishment and diagnosis of mental illness by the ABC Health unit.
I have met a few odd people over the years. My emotions after encounters with these people can range from laughter, anger, frustration, despair, “face palm” and on and on and on.
The people who drive me up the wall the most are the ones who refuse to take responsibility for themselves. Everything is always everyone else’s fault. “Everyone is against me”. “No one helps me….. blah blah blah”.
Not sure if the flaw was not enough “discipline’ as a kid or too much “discipline”.
Doctors and nurses are there to help and support. All the time. Each time.
But people need to take responsibility. Find transport. Get your medications and take them. Attend appointments…. on time. Take care of your family members. Parents have taken care of us through our life… come with them for their important appointments and discussions. Support your children regarding difficult decisions.
The only one I can truly change is myself. Let me start with me.
Macquarie University undertook research and found a link between some infected implants and Anaplastic Large-Cell Lymphoma. This is a rare condition and they found a total of 40 cases in Australia and New Zealand. Interesting read in the ABC site.
We are watching people live longer and longer after being diagnosed with cancer. It is either due to early detection of cancer and treatment or due to better treatment options available now. It is super news for each one of us who are working with people with cancer.
There is a good article in the BBC which illustrates this well.
We are increasing using InfusaPORTs for chemotherapy, immunotherapy and biological agents. Treatments are used long terms and trying to find an intravenous access is a pain for the patient and the nurse. PICC lines or InfusaPORTs are the way forward.
The issues with an InfusaPORT is that a surgical procedure is required to insert as well as remove it. The advantages are numerous – no need of a dressing or lines sticking out of your arm. Easy to maintain. Needs a flush every 4 – 6 weeks. Cosmetically much better. Chances of infection are much lower.
I have attached a video of an InfusaPORT insertion for your interest.
In the past few months, I have had patients come to clinic and tell me – “I googled you and found this paper and this article and on and on”. I started asking patients about their online activity and was quite surprised by some of their answers.
Lots and lots of people are online. Even if they struggle to get online themselves, their relatives or friends help them to get information.
The libraries are a fantastic resource for so many in the community, where they get access to the internet for free.
I decided that a website is something worth creating. Spent the past few days setting up a site. It has been a fascinating trip.
The Blog would be linked to this website and it would hopefully grow as time goes along.
Thank you for your support and help.
The most comprehensive article I have found about open access issues involving academic research. Ars Technica has really done a great job with this. Well done.
Sci-HUB: The Pirate Bay of Research Papers. Great write-up about Alexandra Elbakyan, who has created a site for academic papers. This is upsetting traditional journal sites, and copyright issues are creating huge issues for the website.
Great article in the New York Times – SciHUB is buzzing like crazy this year!!
I meet so many people each week who have been diagnosed with cancer, yet have not accessed or discussed about their Superannuation.
In Australia, Super is intended to be kept as as the pension fund. There are special circumstances when Superannuation can be accessed earlier in life.
There are four main components of Insurance:
# Income Protection: Is the patient cannot work for a period of time, they can use their insurance to get a portion of their salary
# Trauma cover: Cancer, Heart attack and Stroke prompt a payout, while patients recover from this condition
# Total and Permanent Disability: a payout is made, when the patient can never return to work ever again (due to the condition)
# Terminal Illness: the final payout is made when the patient has died or has less than 24 months of life remaining
Very important to discuss this with your General Practitioner and Specialist. Having extra money in your bank is one huge stress taken off.